Information Resources

One in 5000 Foundation
The ONE in 5000 Foundation website is dedicated to be a worldwide resource for the Imperforate Anus (IA) / Anorectal Malformation (ARM) community. Our vision is to ensure that within the next 5 years, every child born with (IA) / (ARM) around the world is guaranteed the following four outcomes, we call the AIMS program, which focuses on AWARENESS; INFORMATION; MEDICAL; SUPPORT.

Italian Association for Anorectal Malformations

CORD – Canadian Organization for Rare Disorders
CORD is Canada’s national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders.

eMedicine from WebMD
Launched in 1996, comprises the largest and most current Clinical Knowledge Base available to physicians and other healthcare professionals. Nearly 10,000 physician authors and editors contribute to the eMedicine Clinical Knowledge.

IFFGD – International Foundation for Functional Gastrointestinal Disorders
IFFGD, the International Foundation for Functional Gastrointestinal Disorders, is a registered nonprofit education and research organization founded in 1991. IFFGD addresses the issues surrounding life with gastrointestinal (GI) functional and motility disorders.

Medical On-line Australia
Medical Online is a site designed to put both health care professionals and the general public in contact with medical information.

MEDLINE Plus brings together authoritative information from the US National Library of Medicine, US National Institutes of Health, and other government agencies and health-related organizations.

Merck Engage
Symptom navigator; health encyclopedia; medical dictionary; interactive body guide; 3D medical animations; patient education; The Merck Manual – Home Edition; OTC drug guide; clinical trials information; source report archives; Medline Plus

National Digestive Diseases Information Clearinghouse (NDDIC)
The National Digestive Diseases Information Clearinghouse (NDDIC) is an information dissemination service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The NIDDK is part of the National Institutes of Health (NIH), which is part of the US Department of Health and Human Services.

National Kidney and Urologic Diseases Information Clearinghouse
NKUDIC was established in 1987 to increase knowledge and understanding about diseases of the kidneys and urologic system among people with these conditions and their families, health care professionals, and the general public. To carry out this mission, NKUDIC works closely with a coordinating panel of representative from Federal agencies; voluntary organizations on the national level; professional groups; and State health departments to identify and respond to informational needs about kidney and urologic diseases.

National Kidney Foundation
The National Kidney Foundation, Inc., a major voluntary health organization, seeks to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation.

NORD – National Organization for Rare Disorders
The National Organization for Rare Disorders (NORD), a 501(c)3 organization, is a unique federation of voluntary health organizations dedicated to helping people with rare “orphan” diseases and assisting the organizations that serve them. is a patient education site written and reviewed by urology experts in partnership with the American Urological Association Foundation. Visitors can search by choosing from adult or pediatric conditions, or by entering a condition in the search option.

Wound, Ostomy and Continence Nurses Society
The WOCN Society is a professional nursing society which supports its members by promoting educational, clinical and research opportunities to advance the practice and guide the delivery of expert health care to individuals with wounds, ostomies and incontinence.

Entrez PubMed
PubMed is a service of the US National Library of Medicine that includes over 19 million citations from MEDLINE and other life science journals for biomedical articles back to the 1950’s. Citation may include links to full-text articles from PubMed central or publisher website.

United Ostomy Association of America
United Ostomy Association of America is a nonprofit organization supporting, empowering, and advocating for people who have had or will have an ostomy or continent diversion surgery.

The VACTERL Network provides support to families affected by VACTERL/VATER. The organization shares resources, tips, and information among families in an effort to help make the journey with VACTERL as easy as possible.

A nonprofit organization established in 2011 to raise awareness and support for those battling Hirschsprung Disease.

Youth Rally
The Youth Rally is a one of a kind camp experience for youth living with conditions of the bladder and/or bowel system. They encourage self-confidence and independent living through their camp experience. The yearly camp rotates through different college campuses within the United States and provides a week of fun filled activities.