Information, Education, Support and Advocacy for
Families, Children, Teens and Adults Who Are Living With The Challenges of
Congenital Anorectal, Colorectal or Urogenital Disorders


 

***Click here for membership renewals***


NEW!Patient/Family Colorectal Web Meeting that will be happening on August 10th from 8 am until 10 am (Colorado time = Mountain Time)

Registrations are free and can be done in the following link:

https://redcapsurveys.childrenscolorado.org/surveys/?s=JLRA7PXP33

Agenda:

8:00 am – 8:15 am: Alberto Peña “From 1980 (the first PSARP) until now – what has happened?”

8:15 am – 8:30 am: Andrea Bischoff “An overview of Anorectal Malformation, Sacral Agenesis Hirschsprung, and Bowel Management”

8:30 am – 8:40 am: Duncan Wilcox “When urology follow up is important for patients with Anorectal Malformation, Sacral agenesis, Spina Bifida, Hirschsprung and Idiopathic Constipation”

8:40 am – 8:50 am: Veronica Alaniz “When should the gynecologist be involved?”

8:50 am – 9:00 am: Jens Goebel “Tips on how to protect the kidneys”

9:00 am – 9:10 am: Brent O’Neill “Tethered cord – what everybody should know”

9:10 am – 9:25 am: Laura Judd-Glossy and Stefanie Curry – “Mental Health in Congenital Colorectal Conditions – hints, warning signs, tips for parents/patients”

9:25 am – 9:35 am: Traci Smith and Natalie Medrano “How the colorectal support network can help you?”

9:35 am – 10:00 am: Questions and answers submitted during registration

This year we will have a live chat for live questions.


Thank you to all who attending the PTN conference in Phoenix!

We had 105 families and 30+ experts totalling more than 350 people! Lots of informative sessions and great opportunities to mingle and meet new friends. Many reconnected with friends from past conferences. The hotel was beautiful and we even survived the record breaking heat of 118 degrees F one day! We look forward to reuniting again in Raleigh in 2020! See you there!

Pull-thru Network Conference

July 26-29, 2018 At the Pointe Hilton Tapatio Cliffs Resort!

 


Welcome

Pull-thru Network (PTN) was founded in 1988 and has grown to be one of the largest organizations in the world dedicated to the needs of those born with an anorectal malformation or colon disease and any of the associated diagnoses.  These diagnoses include:

♦ Imperforate Anus ♦ Cloaca ♦ Cloacal Exstrophy ♦ Anal Stenosis ♦  Bladder Exstrophy ♦ VACTERL/VATER Association ♦ Hirschsprung's Disease ♦ Tethered Spinal Cord ♦ Neurogenic Bladder ♦ Caudal Regression ♦ Down Syndrome and ♦ others

Despite the differences in diagnoses, the members of Pull-thru Network are bound together by a common need for information, education, support and advocacy for families, children, teen and adults who are facing the challenges of these diagnoses.  We invite you to take a look at the programs and services provided by Pull-thru Network and encourage you to take advantage of all that is available by becoming a PTN member.  Membership is required for participation in many of the features of this website.  By requiring membership, Pull-thru Network is protecting your and your child's privacy while facilitating an open exchange of information between members.  

If you have any questions, or need additional information, please do not hesitate to let us know. Contact us at: pullthrunetwork@gmail.com  Phone: 309-262-0786

Lori Parker, Executive Director, Normal, Illinois

Hollie Filce, Associate Director, Hattiesburg, Mississippi

Carmell BurnsDirector, Paradise, Utah

Tenley GrittsDirector, Chula Vista, California

Tricia MihalicDirector, Traverse City, Michigan

Chelsea Mullins, Director, Wichita, Kansas

Bea Smith, Director, Austin, Texas


Shop for your Valentine at smile.amazon.com/ch/20-2947255 and Amazon donates to Pull-thru Network Inc.

Earn AmazonSmile Donations today.


Want to plan a social for PTN members in your area? Email us at pullthrunetwork@gmail.com. We can help support your gathering!


PTN Member Chat

We are no longer holding monthly chats on the website. This is a temporary action. Updates on future chats will be posted here.


 

 

 

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