Recent blog posts from PTN
Do you have an idea for a blog post you would like to write or see written here? Please let us know by sending an email to info@pullthrunetwork.org.
Our blog covers useful topics around education, events, and other ways to get involved. 📝
2026 National Conference
The 2026 National Conference is next year! Learn more on our new events page!
2025 Regional Conferences
Join us at one of our Regional Events this Year! We are pleased to announce PTN regional conferences for 2025….
Inspirational books and stories
It can be challenging to live with a rare disorder. The following books each have a mission of inspiration, strength,…
Calling all campers!
Are you interested in going to camp? 🏕️ Youth Rally is a week-long camp held on a college campus. Campers…
2024 Conference – Recap
It’s been a little over three weeks since conference ended. We hope everyone made it home safely. Our July 2024…
Dare to be rare! – Rare Disease Day 2024
Rare Disease Day is coming up on February 29, 2024! Learn more on the National Organization for Rare Disorders (NORD)…






