2025 Regional Conferences
Join us at one of our Regional Events this Year! We are pleased to announce PTN regional conferences for 2025….
Inspirational books and stories
It can be challenging to live with a rare disorder. The following books each have a mission of inspiration, strength,…
Rare Disease Day 2025
Rare Disease Facts – A disease is considered rare if it affects fewer than 1 in 2000 people. 300 Million…
Calling all campers!
Are you interested in going to camp? 🏕️ Youth Rally is a week-long camp held on a college campus. Campers…
2024 Conference – Recap
It’s been a little over three weeks since conference ended. We hope everyone made it home safely. Our July 2024…
Dare to be rare! – Rare Disease Day 2024
Rare Disease Day is coming up on February 29, 2024! Learn more on the National Organization for Rare Disorders (NORD)…
Importance of education for managing anorectal malformations
This article, from the journal Seminars in Pediatric Surgery, highlights the importance of education as well as the role of…