2026 National Conference
Pull-thru Network National Conference 2026 It’s hard to believe it’s already been a week since we said goodbye in Charlotte,…
World Anorectal Malformations Day
Did you know that March 20 is the official World Anorectal Malformations Day? The Asociacíon Argentina de Malformacíon Anorectal (AMAR)…
2025 Regional Conferences
Join us at one of our Regional Events this Year! We are pleased to announce the remaining PTN regional conferences…
Hirschsprung Disease
Hirschsprung Disease
2026 National Conference
The 2026 National Conference is next year! Learn more on our new events page!
2025 Regional Conferences
Join us at one of our Regional Events this Year! We are pleased to announce PTN regional conferences for 2025….
Inspirational books and stories
It can be challenging to live with a rare disorder. The following books each have a mission of inspiration, strength,…
Calling all campers!
Are you interested in going to camp? 🏕️ Youth Rally is a week-long camp held on a college campus. Campers…
2024 Conference – Recap
It’s been a little over three weeks since conference ended. We hope everyone made it home safely. Our July 2024…
Dare to be rare! – Rare Disease Day 2024
Rare Disease Day is coming up on February 29, 2024! Learn more on the National Organization for Rare Disorders (NORD)…